Sam decided he was ready to go to heaven! We got to spend some precious moments with him before he decided it was time to become our little angel. We love him very much and are so proud at how hard he fought! Thanks for all the prayers.
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We are spending our last precious moments with Sam. He is ready to go to heaven.
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We just had a very "uneventful" visit with Sam which was very nice.  He is pretty stable right now and seems comfortable with his new belly position.  Just hoping and praying that he has found some comfort and will continue to stay happy.  Its amazing how quickly his condition can change for the good and for the bad.  Every moment we get to spend with him is a real joy and we know he is in good hands.  Nurse Kerry will be back again tomorrow which is nice because we have gotten to know her well and Sam seems to like her :)

Thanks for all the prayers and support.  Hopefully tomorrow brings more good news!

"Doctor said there'll be days like this, there'll be days like this, Sam's doctor said..."

The roller coaster has left the station and Sam is taking us for a wild ride. We rushed to the hospital first thing this morning, preparing ourselves to lose him. For a few horrible minutes, we just looked at our baby and waited to see what God would do. At that point, the doctors had pretty much done all they could do. I didn't cry or anything then because I was just waiting. I knew there would be plenty of emotion coming, either good or bad, so all I could do was wait.

The respiratory therapist suggested putting Sam on his stomach. That was something they hadn't tried yet, and he quickly started doing better. He has done well all day. We could not believe it when we were able to continually turn down his oxygen percentage because he was doing so much better.

Sam continues to amaze us with his resilience. Today was the first time we had to rush to the hospital, but it probably won't be the last. It is crazy to think that we will have to continue to prepare ourselves to lose our precious son if God wants to take him, while hoping and praying that God's will is for him to grow strong and healthy. I told God that if he takes Sam, I will accept it, but I won't like it. :)

That being said, there is so much joy in the high moments. It is still joyful to have a baby boy who is SO CUTE even if he is in such a fragile state. Even though this road will be long (it already feels long) and difficult, I wouldn't trade it for the world because I love being able to see and be with my boy. And he is really, really cute! I know all new mothers think that about their child, and I am no exception with my blond haired tiny baby.

This kid is a fighter. He is still going strong laying on his stomach. He doesn't like people messing with him right now so they are trying to just let him rest as much as possible. His oxygen levels are the best we've seen in a couple days. It can all change very fast, but pray that this continues!
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He is still liking his stomach. He goes through a spell about every 30 minutes where his levels drop quickly, but then he usually bounces back pretty quick. Sam is certainly running the show right now! He does what he wants when he wants :).
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We woke up to the phone ringing this morning at 8 am. It was the Nicu calling saying we should come up there quickly. The doctors have done about all they can do for him at this point. When we got up here, they decided to roll him on his stomach and see if that would do anything. It is working so far. His oxygen has bounced back a little which is great news but we don't know how long this will last. We are prepared for whatever happens and know that its all up to God, whether he takes him today or in 80 years. Thanks for all the prayers!
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